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Revue de presse :
'Beyond the Pale is a brave, thoughtful, clear, and always graceful journey through the terrifying randomness of genetics and the unexpected ways genetic anomalies canmarknotjustchildren,butallthelivesaroundthem. Bestofall,itendswitha surprise-one that will interest anyone thinking of having a family.' Ian Brown, author of The Boy in the Moon: A father's search for his disabled son; 'Beyond the Pale is a powerful story about maternal love, the long reach of family and the ways --good and evil - we react to disability.' Katherine Ashenburg, author of The Dirt on Clean: An Unsanitized History; 'A graceful, perceptive rendering of a misunderstood condition.'- Kirkus Reviews
Présentation de l'éditeur :
Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.
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- ÉditeurJacaranda Books Art Music Ltd
- Date d'édition2016
- ISBN 10 1909762334
- ISBN 13 9781909762336
- ReliureBroché
- Nombre de pages292
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Beyond the Pale
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(2016)
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Beyond the Pale: Flklore Family and the Mystery of Our Hidden Genes
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Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes
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Description du livre Etat : New. 'Beyond the Pale is a powerful story about maternal love, the long reach of family and the ways -- good and evil - we react to disability.' - Katherine Ashenburg, author of The Dirt on Clean: An Unsanitized History Num Pages: 288 pages. BIC Classification: BM; VFJB; VFX. Category: (G) General (US: Trade). Dimension: 142 x 266 x 23. Weight in Grams: 290. . 2016. Paperback. . . . . N° de réf. du vendeur V9781909762336
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Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes
Edité par
Jacaranda Books Art Music Ltd
(2016)
ISBN 10 : 1909762334
ISBN 13 : 9781909762336
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Description du livre Etat : New. 'Beyond the Pale is a powerful story about maternal love, the long reach of family and the ways -- good and evil - we react to disability.' - Katherine Ashenburg, author of The Dirt on Clean: An Unsanitized History Num Pages: 288 pages. BIC Classification: BM; VFJB; VFX. Category: (G) General (US: Trade). Dimension: 142 x 266 x 23. Weight in Grams: 290. . 2016. Paperback. . . . . Books ship from the US and Ireland. N° de réf. du vendeur V9781909762336
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Beyond the Pale Folklore, Family and the Mystery of Our Hidden Genes
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ISBN 13 : 9781909762336
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Description du livre Paperback. Etat : new. Paperback. Emilys story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.Emily is drawn to understanding her childs differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror. Emily is drawn to understanding her child's albinism by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. N° de réf. du vendeur 9781909762336
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